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| I had my last visit with the special Retinal Specialist today. Two and a half hours it took with one test after another. They were really busy, too. My eyes were so wide open I was afraid to blink. I think I should have stayed a while longer to let the drops fade away. I had to stop at a shopping center until I could actually see.
It was very nice to know that my eyesight has improved...a lot. The touch of macular degeneration is gone to his surprise and the orange blob is either gone or I have trained myself to look around it or ignore it. Still no idea what it was until we started discussing the new oddity I was embarrassed to bring up. For the last couple of months I have had my startle reflex almost worn out by the sudden appearance of a revolving white cylinder just at the edge of my right eye. I swear I got a sore neck from the thing just appearing out of nowhere. I knew it was rotating because it has a stripe spiraling from the top to the bottom and it moves. Have you ever heard of such a ridiculous thing? I know I'm not hallucinating. But he gets a grin on his face and says he's glad I told him because it explains everything. Not the cylinder, that is still pretty weird but the stripe, now that is the last part of the puzzle. I have Ocular Migraines. ???? Now I have had migraines since I was 10 or 12, and until a few years ago they were pretty devastating, then for some reason they stopped hurting. I still have the migraines, they show up in an EEG and other tests, they just don't make me want to smash head first into a wall. They are Silent Migraines and the Ocular Migraine is also silent. There is no treatment, so I will have to train myself out of the startle reflex or continue to have a sore neck. The bad news is they could decide out of the blue to get noisy again. What is surprising is, according to the Doctor and the 472,000 entries on Google search it is rather common. Does anyone here share my condition? I would love to hear about it. Sandy |
Follow-Up Postings:
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- Posted by goodkarma_ 5b (My Page) on Sat, Aug 15, 09 at 21:22
| Sandy, We had a similiar experience that turned out to be a little scary. DH has had some strange light spots and floaters in his vision that were diagnosed in the past as the auras precluding a migraine. Yet he has no history of migraines. Three years back He had a weird white spot, lots of floaters and turns out he had developed retinal tears. We have a friend who is an optomolgist so he got emergency laser surgery that day. Scary. I know your case may be different but the similarities are kind of unsettling to me. Perhaps a second opinion if it does not improve for you? Lisa |
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- Posted by sleeplessinftwayne z4-5 IND (My Page) on Sun, Aug 16, 09 at 8:22
| Hey, Lisa, thanks for the response. This doctor is the third opinion, LOL, and I have had migraines my whole life. Surprisingly, the headache pain vanished some time ago. All the other symptoms were there and an EEG showed the migraines were still going on. It's called a Silent Migraine although no one told me that at the time. To tell the truth, I might have dismissed all of this in embarrassment if it had not made it so hard to read. There is nothing that is going to stand between me and my books. When this started a year ago, there was a large orange ball with a small off center beige dot that seemed to sit about eight inches into my visual field. Some how, I was looking at the back of the inside of my eye and no one was more surprised than I was to see pictures of it on the Opthamologist's office walls. I am so glad your husband had a quick response. A lot of people might have ignored it or had a doctor who didn't know what it was. Do they know what caused it? My problems are a result of irregular blood flow to the brain as are regular Migraine headaches but no one knows yet why it happens. I never would have associated it with my migraines. Thank goodness for laser surgery and a doctor who was on the ball in your husbands case. Sandy |
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- Posted by chickadeedeedee z 6-7 ish Ohio (My Page) on Sun, Aug 16, 09 at 10:41
| Hi Sandy. I've had migraines since 1995. They started off as the ~typical~ three day events of horrible pain, nausea, light bothers me and curl up in a dark corner somewhere. Over time it progressed to DAILY severe pain +/- the nausea. Don't know how many times I've gone to the hospital because of the pain or how many medications I've been on to keep things under control. It wasn't until this year I had the aura occur which was or was not followed by the pain. Last month I had my first, and hopefully last, ocular migraine. My eyesight was very blurry. I could not focus enough to read. I had to stop doing surgeries for those three days of symptoms. There was no headache during this event. I think I rather have the headache instead of blurry vision. A thousand years ago I was working for a veterinarian when he experienced his first ocular migraine. He was rushed to the emergency room ... I remember his symptoms were like the ones I was experiencing so I kinda-sorta knew what I was experiencing at that point. Strangely enough ... a few days later I was having lunch with a client and she told me that she had her first ocular migraine two days before I had mine! Hers lasted for three days as well. She too went to the emergency room, had all the scans .... went to her regular physician and finally to the Ophthalmologist. The Ophthalmologist knew immediately what was her problem and even showed her a video explaining the problem. He was sorry she had gone through all the testing because none of the other physicians ever heard of the problem! Glad your beloved is okee-dokee, Lisa. |
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- Posted by sleeplessinftwayne z4-5 IND (My Page) on Mon, Aug 17, 09 at 12:47
| Hey, Chicky. I know you are a lot younger than I am and I know there are different ways of testing for migraines now but boy, do I ever understand the curl up in a dark corner thing. When I started getting them, it was thought that children don't get headaches so no one believed me especially my older sisters who insisted I was lying to get out of doing chores. I didn't see a doctor for them until I was in my teens and then the only treatment was codeine along with icepacks on the head and lots of blankets up to the chin in a dark and very quiet room. If I didn't take a pill soon enough, it wouldn't stay down. The rest, I was already doing. I don't want to remember the times some one forced aspirin or food down me. I have never understood why people could not leave me alone when all I wanted to do was try to sleep it away. Things that I know will start one are certain perfumes and red wine. Light through a picket fence will do it every time and overdoing sugar. There are other things as well and you can't always avoid them or explain them to someone while you have one because talking makes it worse. Ditto on the Emergency Room. If I got there the only thing that would work was a shot of Demerol which put me to sleep. Do you notice a pattern? LOL! I have been noticing a number of new treatments. Hope I never need them. Hope your problems get less as mine have. Lisa, if your Doctor hasn't tried to find out what caused the damage to your DH's eye you might want to ask a few questions. I wound up with a scar on the outer edge of the retina that scared me silly when I discovered I couldn't see out of a portion of one eye. It turned out it was from very high blood pressure and no one had noticed. It has gone away after 40 years but it could have been worse if I hadn't gone on a special diet for a while. Sandy |
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| Hi Sandy, I used to have migraines, but they're gone now (I think it was hormone related). (And those are gone now! No more hormones! *giggle*) I have had "sinus headaches" since I was a teen. I have had innumerable suspected sinus infections treated with antibiotics, and lo and behold, after two days of the antibiotics the headache suddenly disappeared. Then, one day - I think in my forties? - I had funny specks in my eye on my way to a new ENT. He insisted I didn't have a sinus infection and for the spots I should go to an eye doctor. I got an eye appointment a few days after, and told the opthalmologist. He immediately diagnosed it as a migraine. He showed me a picture of the optic nerve, and the pattern in my eye looked identical to the cross section of the nerve. In my eye it used to look like a doughnut shape, fading to a snowflake-like shape, thicken to a doughnut, fade to the snowflake, etc. At some times I've also had trails of little blinking triangles, which showed up more before the headache, the doughnut/snowflake during the headache. Mine were 48 hours long, every two weeks. We eventually settled on me taking a daily beta blocker (or was it a calcium blocker), it took the edge of the pain very nicely and made me stay functional. I forget the name though. Then some specific painkiller if it was still very painful... which made me want to take corners veeerrry slowly... :) Mary *wondering how many migraines we treated with antibiotics...* |
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| Verapamil. :) Mary |
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- Posted by goodkarma_ 5b (My Page) on Tue, Aug 18, 09 at 15:19
| Sandy, Thanks for your concern. :) DH has astigmatism (sp?) and his eyeballs are more football shaped then round. People with this problem can suddenly develop these retinal tears-and if not fixed soon enough can go blind. Very scary and we never know if and when it may happen again. I am glad your Migraine pain is gone. And really hope that you C3D and Mary never get another one again. Lisa |
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- Posted by pashta_2006 Z4 ADK NY (pashta@aol.com) on Tue, Aug 18, 09 at 19:23
| Sandy, I had daily migraines from the time I was a small child. I learned to live with them. Usually I could continue on with life, only occassionaly having to blacken the windows, put cotton in my ears and writhe on the bed for a few days. I was about 28 and working as an accountant when I suddenly had blurry vision every day at about 2:30 pm. I was still having the painful kind too. After a few weeks I went to the Dr and he told me I was having cluster migraines. He gave me some meds that would help for a couple of weeks then all the pain would come back and he'd switch to another med. The final straw was when I was driving to work (luckily I had a jeep and lived in the country) and looked at the sun and it had beautiful rainbows around it and I just drove toward it. I "came to" way off in a field, still driving toward the beautiful sun. I carefully got back on the road and continued on to work. I called the Dr and told him what happened and that I would rather have the migraines than experience all I'd been through with the meds. He said, "You know there is a government grant for something new called bio-feedback training and a local nurse practicioner is doing it here in Vt. I don't know anything about it, but I'm going to refer you." That was the end of my migraines. All kinds. For the first time in my life I my head was pain free. I guess it's like the silent migraines you talk about. They are still happening, but my body automatically goes into the bio-feedback routine all by itself after all these years (I'm 62 now). Sometimes I'm aware of the bio-feedback kicking in. If I consciously look for the migraine I can find it and sort of feel it, but no horrid pain. I have a bad headache about once or twice a year, but they don't act like the migraines I used to have. I guess they are just plain old headaches. I never thought of having an EEG. It would be interesting to see what it shows. Anne |
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- Posted by catherinet z5 (My Page) on Wed, Aug 19, 09 at 16:22
| Hi Sandy, I've had migraines since I was 8, but didn't have auras until I was about 22. They got horrible during perimenopause, but now that I'm through that, I only get the aura, with no headache.........so I call them visual migraines. I get the wildest colored flashing lights in a circle. Mine are usually jagged lines with segments of red/blue/green. They flash and oscilate. I know its coming because I suddenly feel like there's a spot missing in my vision, then the aura follows. You're right......it is extremely scary if you're not used to them. They only last about 20 minutes, so now I just wait patiently for them to leave (while taking some tylenol). It can be scary if they start when you're driving. I've heard that women who have them their entire lives tend to get rid of them in menopause. But unfortunately, if women develop them during menopause, they usually keep them. |
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- Posted by sleeplessinftwayne z4-5 IND (My Page) on Fri, Aug 21, 09 at 0:56
| Anne, I totally forgot about the bio-feedback! In my senior year of highschool and first year of college, I was really desperate. I had read about the bio-feedback but no one was doing it in our area so I decided to learn to do it by myself. I managed to get myself in the out of sync state of mind which allowed me to function until I was able to get to a place where I could safely let go. The big problem was when other people inadvertently broke my concentration. Then it would hit me twice as hard. I remember leaving an art class and getting to a lounge where all I could do was put my head down and let the tears run. Someone noticed and told my advisor who came and chased all the girls out so he could talk to me. I was finally able to get him to understand and he had someone take me to the nurses office where I could lay down. A few weeks later, in another art class (I was an art major)we were watching slides of architectural details and I had my head on my hands. The professor asked me if I was getting a headache and got so upset even though I said no, he stopped the class and wouldn't continue until I left. LOL! I could have played the whole art department. One thing I found out was my painting style changed when I had a migraine and I was controlling it. It was much more free and flowing. Even the teachers noticed and wanted to know what had changed when I was doing those particular paintings. I know it was too distracting and painful to change my strokes and the images just kind of built on themselves. Then there was the doctor who told me that my headaches were because I was sexually repressed and he would be glad to help me out with that problem. Sandy |
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- Posted by pashta_2006 Z4 ADK NY (pashta@aol.com) on Fri, Aug 21, 09 at 17:10
| Sandy, OMG. I ran into a Dr sort of like that too!!! Matter of fact, now that I think of it, two like that. hahaha I don't even know if bio-feedback training is still done but it sure worked for me. You also could buy a home monitor for training. Maybe one is still available somewhere. Good luck! |
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- Posted by sleeplessinftwayne z4-5 IND (My Page) on Tue, Aug 25, 09 at 17:41
| I mentioned about the Doctor to someone recently and she wanted to know why I hadn't turned him into the medical board and sued him for a million or two. She had no comprehension of conditions at that time. What a change there has been in Dr./patient relations. I wasn't even going to him for the headaches. It was just a coincidence I got one just before my appointment and my husband thought I should go anyway so I could get a shot and some other medication. I walked out on him but I remember being embarrassed as if it was my fault. Sandy |
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| I get the difficulty focusing or reading then the flashing colored lights. They only last exactly 20 minutes. I time them. Only once in a while will I develop a headache afterwards. I have had my GP and also eye doctor tell me that I am having a Migraine without the headache. As long as they don't last any longer than that and I don't get the headaches, I figure I can live with them. I am on verapamil for my blood pressure and have been for more than 25 years. |
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